Image of girl with headphones on holding phone on beach

Building a Family Sensory Toolkit

 

Tigger Pritchard delivered a great workshop with The PDA Space where they discussed ‘The Sensory Impact of School Holidays’, which is available to watch here in The PDA Space Portal.

I have also created a FREE E-BOOK ‘Building a Family Toolkit’ which is available in my shop.

https://autisticrealms.com/shop/



Sensory Systems

Everyone has a sensory system; autistic and otherwise neurodivergent people may find some of their senses are more or less sensitive and different from other people’s. Autistic needs are fluid, as is the sensory system; what is tolerated one day may not be tolerated the next.

More sensitive = hyper-sensitivity

Less sensitive = hypo-sensitivity

Hypersensitivity: a more intense / heightened response to sensory stimuli, to the point it could feel very uncomfortable or even painful (e.g., light/sound/taste/touch/smell/movement/pain).

Hyposensitivity: a lower response to sensory stimuli, may be unaware of pain or not as responsive as you may expect

(e.g., light/sound/taste/touch/smell/movement/pain).

Having a highly responsive, perceptive sensory system can be wonderful as it enables you to experience the world intensely, but it can also be exhausting and difficult to manage. Holidays can bring more challenges for neurodivergent people as lots of things change, which can raise anxiety and cause more sensory dysregulation.

Changes may include:

  • Weather

  • Clothing

  • Types of Food

  • Routines of the day

  • Going to different places and being with different people

Autistic people can be a lot more or less sensitive to certain things. Holidays can create uncertainty as your usual dependable routines and ways of living suddenly change.

There are eight primary senses, but recent research shows there may be up to 33 different senses!

1. Sight

2. Hearing

3. Smelln

4. Touch

5. Taste

6. Proprioception (body awareness)

7. Vestibular (movement and balance)

8. Interoception (internal body sense, e.g. feeling hot /cold/hungry /pain or need the toilet)

Uncertainty can increase anxiety

It can help recreate the sensory elements and the things that help you, your child or young person in their usual routines to provide consistency during the holidays.

Try to be a Sensory Detective and consider what sensory input you, your child or your young person may be struggling with. Also, think about when you or your child is most happy and regulated. What sensory brings joy, what calms or stimulates, and what works well to help regulate the senses? Thinking about these questions will help you create a family sensory toolkit.

You can use the following page as a template to stick on your fridge or type into the notes on your phone to help you work out your child’s areas of difficulty and what may help them regulate their sensory system. This will help you build up your sensory toolkit.

Why not try this for the whole family?

We all have sensory needs, and it may be a nice way to model and for everyone to work together and open up conversations about their own sensory responses.

Learn more about building your family sensory toolkit by downloading your free e-book from my shop.

Signposting:

The PDA space

Autistic | Tiggertraining/Bridging The Neurodivide | England

Kelly Mahler | Interoception | Interoception Activities (kelly-mahler.com)


Latest Posts

  • Autistic Burnout – Supporting Young People At Home & School

    Autistic Burnout – Supporting Young People At Home & School

    This is a revised and updated version of the article I previously published with Thinking Person’s Guide to Autism  ‘Supporting Your Young Person Through Autistic Burnout’ (Sep 2023). Click here to download  ‘Autistic Burnout: A Family Guide‘ (137-page PDF resource) Being autistic is not an illness or a disorder in itself, but being autistic can…


  • Monotropic Interests and Looping Thoughts

    Monotropic Interests and Looping Thoughts

    The theory of monotropism was developed by Murray, Lawson and Lesser in their article, Attention, monotropism and the diagnostic criteria for autism (2005). ​ Monotropism is increasingly considered to be the underlying principle behind autism and is becoming more widely recognised, especially within autistic and neurodivergent communities. Fergus Murray, in their article Me and Monotropism:…


  • Map of Monotropic Experiences

    Map of Monotropic Experiences

    Monotropism seeks to explain Autism in terms of attention distribution and interests.  OSF Preprints | Development and Validation of a Novel Self-Report Measure of Monotropism in Autistic and Non-Autistic People: The Monotropism Questionnaire This map highlights 20 common aspects of my personal monotropic experiences. How many do you experience? Where are you on the map…


  • The Double Empathy Problem is DEEP

    The Double Empathy Problem is DEEP

    “The growing cracks in the thin veneer of our “civilised” economic and social operating model are impossible to ignore”, Jorn Bettin (2021). The double empathy problem (Milton, 2012) creates a gap of disconnect experienced between people due to misunderstood shared lived experiences. It is “a breakdown in reciprocity and mutual understanding that can happen between people…


  • Top 5 Neurodivergent-Informed Strategies

    Top 5 Neurodivergent-Informed Strategies

    Top 5 Neurodivergent-Informed Strategies By Helen Edgar, Autistic Realms, June 2024. 1. Be Kind Take time to listen and be with people in meaningful ways to help bridge the Double Empathy Problem (Milton, 2012). Be embodied and listen not only to people’s words but also to their bodies and sensory systems. Be responsive to people’s…


  • Autistic Community: Connections and Becoming

    Autistic Community: Connections and Becoming

    Everyone seeks connection in some way or another. Connections may look different for autistic people. In line with the motto from Anna Freud’s National Autism Trainer Programme (Acceptance, Belonging and Connection), creating a sense of acceptance and belonging is likely to be more meaningful for autistic people than putting pressure on them to try and…


  • Monotropism, Autism & OCD

    Monotropism, Autism & OCD

    This blog has been inspired by Dr Jeremy Shuman’s (PsyD) presentation, ‘Neurodiversity-Affirming OCD Care‘ (August 2023), available here. Exploring similarities and differences between Autistic and OCD monotropic flow states. Can attention tunnels freeze, and thoughts get stuck? Autism research is shifting; many people are moving away from the medical deficit model and seeing the value…


  • Monotropism Questionnaire & Inner Autistic/ADHD Experiences

    Monotropism Questionnaire & Inner Autistic/ADHD Experiences

     Over the past few weeks, there has been a sudden surge of interest in the Monotropism Questionnaire (MQ), pre-print released in June 2023 in the research paper ‘Development and Validation of a Novel Self-Report Measure of Monotropism in Autistic and Non-Autistic People: The Monotropism Questionnaire.‘ by Garau, V., Murray, A. L., Woods, R., Chown, N.,…


  • Penguin Pebbling – An Autistic Love Language

    Penguin Pebbling – An Autistic Love Language

        What is Penguin Pebbling? Penguins pass pebbles to other penguins to show they care. Penguin Pebbling is a little exchange between two people to show that they care and want to build a meaningful connection. For autistic people, giving little gifts spontaneously can be a meaningful way of communicating that you are thinking…