Humanising Care
A resource created by Lisa Chapman (Speech and Language Therapist)
This resource combines the ideas and thinking of several authors with a singular focus; to help lay out visually the elements that contribute to Humanising interactions, & ‘An experience-sensitive approach to care’ (McGreevy et al., 2023).
Two of the summarised articles were written for health systems and health research (Todres et al., 2009; Heath & Montori, 2023). McGreevy et al. (2023) meanwhile write specifically about autism.
The themes of Acceptance, Belonging & Connection run throughout.
These are the ‘ABCs of Love’, the motto for the National Autism Training Programme: NATP (Anna Freud). 'Love’ is an essential ingredient for holistic healthcare (Heath & Montori, 2023).
All these ideas are furthermore central to #FlipTheNarrative thinking (Chapple, 2023) and reducing both the Double Empathy Gap (Milton, 2012, 2018; Milton et al., 2022) and the Triple Empathy Gap (Shaw et al., 2023).
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This resource is for all who offer care, and all who receive it; going beyond Health into Social Care and Education (see Shannon, 2020, 2022).
“Care happens in the space between people, in an unhurried encounter.”
Let’s offer balanced, experience sensitive, humanistic care in all our interactions;
Care that values people & relationships; Care-givers & care receivers;
Care with time as a medium, not a measure.
References
Anna Freud. (2023). National Autism Trainer Programme (NATP)
Chapman, R., & Botha, M. (2023). Neurodivergence-informed therapy. Developmental Medicine & Child Neurology. 65(3): 310–317.
Chapple, E. (2023), Welcome to CanDoELLA (Exceptional Learning Lifeskills and Achievement).
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Heath, I & Montori, V. M. (2023). Responding to the crisis of care.
The British Medical Journal; 380.
McGreevy, E. [@ElaineMcgreevy]. (2023, November 17). An experience sensitive approach to care with & for autistic children and young people in clinical services. [Post]. X.
McGreevy, E., Quinn, A., Law, R., Botha, M., Evans, M., Rose, K., Moyse, R, Boyens, T., Matejko, M. & Pavlopoulou, G. (2023). An experience sensitive approach to care with and for autistic children and young people in clinical services. Pre-print.
Milton, D. E. M. (2012). On the ontological status of autism: The “double empathy problem”. Disability & Society, 27(6), 883-887.
Milton, D. E. M. (March, 18, 2018). The Double Empathy Problem. The National Autistic Society.
Milton, D., Gurbuz, E., & López, B. (2022). The ‘double empathy problem’: Ten years on. Autism, 26(8), 1901–1903.
Pavlopoulou, G. (2020). A Good Night’s Sleep: Learning About Sleep From Autistic Adolescents’ Personal Accounts. Frontiers in Psychology, 11.
Shannon, B. (2020, May 31 ). Rewriting social sare. Words that make me go ‘hmmmm’: Care.
Shannon, B. (2022, Aug. 27). Rewriting social care. Words that make me go ‘hmmmm’: Kairos Time.
Shaw S. C., Carravallah, L., Johnson, M., O'Sullivan, J., Chown, N., Neilson, S., & Doherty, M. (2023). Barriers to healthcare and a 'triple empathy problem' may lead to adverse outcomes for autistic adults: A qualitative study. Autism. Epub ahead of print.
Todres, L., Galvin, K. T. & Holloway, I. (2009) The humanization of healthcare: A value framework for qualitative research, International Journal of Qualitative Studies on Health and Well-being, 4:2, 68-77,