Tag: Parents and carers
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Spoon Theory and Autism: Energy, Burnout and Monotropism
What spoon theory means for Autistic people: how everyday tasks use up limited energy, why spoons run out faster, and how monotropism and burnout fit in.
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Penguin Pebbling: Theory, Practice and the Five Neurodivergent Love Locutions — A Guide for Practitioners
Penguin Pebbling is a low-demand, neurodiversity-affirming card game built around the Five Neurodivergent Love Locutions — five relational modes natural to many Autistic and neurodivergent people: infodumping, parallel play, support swapping, penguin pebbling, and deep pressure
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Why Attachment Theory Fails Autistic People, and What Might Work Instead
If you have spent any time navigating schools, social care, or therapy as an Autistic person or supporting a loved one, you have likely encountered attachment theory. You may have been blamed for your children’s difficulties and said they were due to attachment disorders and perhaps your parenting issues, or you may have been told…
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Being With People & The Value of Intensive Interaction
Helen Edgar draws on twenty years of practice alongside people with PMLD to explore why Intensive Interaction — when practised with genuine neuro-affirming care — is not just a communication approach. It is a way of being human together.
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Re-Storying Autism
Re-Storying Autism A Framework For Families, Parents, And Carers: Reimagining Support For Autistic People. #1 Amazon Bestseller
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Re-Storying Autism: A New Course & Workbook Now Available!
Re-Storying Autism: A Framework for Families, Parents and Carers Reimagining Support For Autistic People Neurodiversity Affirming Neurodivergent Competent
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Beyond “Complex Needs”: Neuro-Affirming, Relational Practice with Children with Profound and Multiple Learning Disabilities
A neuro-affirming, relational approach to supporting children with profound and multiple learning disabilities, centred on safety, communication, and being-with.
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What schools and parents need to understand about supporting Autistic and neurodivergent children
What schools and parents need to understand about supporting Autistic and neurodivergent children
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Understanding the Double Empathy Problem: A Guide For Autistic People & Families
FREE Neuro-Affirming Communication & Sensory Passport + Training Support Autistic people through better understanding of communication, sensory needs & double empathy.
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Inclusion Needs Recognition, Not Erasure: A Neurodiversity-Affirming Approach
When headlines claim that autism and ADHD are “invented labels,” it’s more than rhetoric, it’s erasure. A explores why removing neurodiversity from education would harm the very children inclusion is meant to protect.
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Navigating PANS/PANDAS & Neurodivergence
Our new PANS/PANDAS info-gathering templates help families, schools & clinicians understand the overlap between neurodivergence and PANS/PANDAS.
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Why PBS is Harmful for Autistic and Neurodivergent Young People
Exploring why and how Positive Behaviour Support (PBS) can harm Autistic people. #Neurodiversity #AutismAcceptance #PBS #DisabilityJustice
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From Autistic Realms to More Realms: Exploring Other Ways of Being
Journey from Autistic Realms into More Realms—where neuro-affirming support meets creative, sensory, and neuroqueer explorations of other ways of being.
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Summer Rhythms for Autistic Parents & Carers: Low‑Demand Parenting, Managing Energy & Sensory Needs
A practical guide for Autistic parents and carers to support energy flow, sensory regulation, and family balance through the summer holidays
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Being With People with Profound and Multiple Learning Disabilities Through Attunement and Shared Time
There’s something incredibly powerful in the simple idea of being with someone. Not doing to or even doing with or for, but truly being with. For people with PMLD, attunement, emotional connection, and flexible shared time can help to create more space for trust and support wellbeing.
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Empowering Advocacy: Neuro-Affirming Support for Your Autistic Young Person at School
By Helen Edgar (Autistic Realms), with David Gray-Hammond & Tanya Adkin Navigating the education system as the parent or carer of an Autistic child can often feel like steering a tiny boat through stormy seas, it can feel impossibly hard and be exhausting. For many families, the challenge isn’t just the school system; it’s the…
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Toileting: A Neuroaffirming Approach to Support your Autistic Child
Toileting is not a race. For many Autistic children, the journey may look different. Respecting a child’s pace, sensory needs, and body signals can make all the difference.
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Neurodiversity Affirming Reading Recommendations
Looking for neurodiversity-affirming reads? I’ve have a growing collection of books listed by autistic authors, advocates, and researchers. Perfect for parents, professionals, and curious minds alike. Explore stories that affirm, not fix. Neurodivergent voices centred. From education to identity, burnout to belonging.
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Autistic Young People: Skills Regression, Burnout or a shift in Monotropic Attentional Resources?
Autistic individuals may not lose skills but instead redirect their monotropic attention toward new interests or areas of development.
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Testimonials for Autistic Realms
Testimonials gathered from National Diversity Awards nomination feedback 2024 and 2025. Feel free to vote for me and others here: Helen is breaking new ground in the dismantling of neuronormativity while working tirelessly to grow and deliver her practice as an Autistic Advocate. I have known of Helen’s work for over 20 years and she…
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Neuro-Affirming Research in Practice: Supporting Autistic Students, Embracing Monotropism In The Classroom And Beyond
Written by Tanya Adkin and Helen Edgar, based on the presentation we delivered to the National Autistic Society Professionals’ Conference in March, 2025. Shared with permission from NAS. We will explore the importance of the theory of monotropism and the significance of flow states and suggest some practical strategies educators can implement to create more…
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Could it be PANS/PANDAS… Be Curious!
This collection of text and images was created collaboratively by neurodivergent educators, working together to shine a light on this often-overlooked area of care and support. Helen Edgar, Joanne Riordan, Laura Hellfeld, Viv Dawes, Julie Webb and Ben Palmer . Have you noticed a change in your child’s ability to cope with life or a decline in their well-being? It is…
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Challenges for Autistic & Neurodivergent Families Navigating the SEND System: We Need to Understand the Double Empathy Problem & Embrace Monotropism
(Blog based on a presentation I delivered to London Met University 14th March 2025, updated April 24th 2025 following the research published by…. Introduction The Special Educational Needs and Disabilities (SEND) system is designed to support children with additional needs, yet for many neurodivergent families, it presents more barriers than solutions. Families navigating this system…
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Book Review: I didn’t see you there. By Charlotte Gale
I didn’t see you there by Charlotte Gale is a powerful journey of poetic memoirs of one family’s path through mental health crisis, diagnosis and embracing neurodivergence. I have been privileged to proof read a copy of this book prior to publication and share my thoughts. “I know I’m not alone thinking or feeling this…
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Radical Resilience
Image of pink flower growing between gaps in pavement. Text:Wild flowers offer hope. Be radically resilient. Find possibilities in-between hard spaces. Be authentic and flourish in adversity. Transform the landscape. Be a wild flower.
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Autistic Burnout – Supporting Young People At Home & School
Autistic burnout in young people is real—and recovery starts with understanding. This post offers neuroaffirming ways to spot the signs, reduce demands, and truly support. 💛 #AutisticBurnout #Neuroaffirming #Monotropism #AutisticSupport
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Map of Monotropic Experiences
The Map of Monotropic Experiences now has a home of its own. Visit monotropicmap.org to explore each of the twenty areas, mark your own map and find the free training. You can also find the free training and downloads further down this page. Monotropism seeks to explain Autism in terms of attention distribution and interests. …
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Spaces For Multi-Sensory Learners and those with Profound and Multiple Learning Disabilities
Helen Edgar (Autistic Realms) and Ryan Boren (Stimpunks) have been exploring radically inclusive learning environments. Cavendish learning spaces are based on flexibility, interaction, movement and the role of embodied responsive experiences. We reject the boundaries of traditional classroom settings and look at how they not only restrict embodied experiences but lead to disembodied experiences and…
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Neuroqueer Collaborative Work Flow Spaces
A behind-the-scenes look into the collaborative workflow between Helen Edgar (Autistic Realms) and Ryan Boren (Stimpunks) as we write about Neuroqueer Learning Spaces (NQLS) and continue our neuroqueering journeys, connecting with awe-inspiring people and discovering new ideas to explore along the way. Liminal Spaces Ryan Boren (Stimpunks) and I are neuroqueering ourselves and the spaces we…
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Celebrations: Neurodivergent-friendly ideas to help make celebrations a success for the whole family
(A guest blog, originally written forand published by ThePDASpace, May 2023) Family life can be busy and chaotic, and you may feel like you are constantly juggling to try and keep some balance to get through the day and avoid a crisis. Changes to everyday routines, such as celebration days and events, can be difficult…
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Neurodiversity Affirming Glossary of Key Words – for families and professionals
For the words of theory and philosophy that More Realms is written in, from neuroqueer and rhizome to Ma, monotropic time and bodymind, see the companion glossary Key Words: A Glossary of Neuroqueer Theory and Philosophy, and the Stimpunks glossary I helped to build. (Glossary written & and originally published for THE PDA SPACE…
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Building a Family Sensory Toolkit
Tigger Pritchard delivered a great workshop with The PDA Space where they discussed ‘The Sensory Impact of School Holidays’, which is available to watch here in The PDA Space Portal. I have also created a FREE E-BOOK ‘Building a Family Toolkit’ which is availablein my shop. https://autisticrealms.com/shop/ Sensory Systems Everyone has a sensory system;…
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Transitions – Supporting young people throughout the day
Updated October 2026. Transitions are one of the biggest hidden demands in a young person’s day, and understanding why they cost so much comes back to monotropism: every switch pulls attention out of a tunnel and costs energy. The ideas below still hold. For the theory in plain language see the monotropism guide; for the…
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Book review – Autistic Burnout, Children /Young People in Education by Viv Dawes
I am excited to announce that Viv Dawes (autistic advocate, writer, and trainer, www.autisticadvocate.co.uk) has just published her new book, Autistic Burnout, Children /Young People in Education, a book aimed at parents of autistic (or other neurodivergent) children. I have revised my preface here as a short review so everyone gets a chance to find…
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Low Demand Parenting (for the whole family)
There are a growing number of courses and books discussing the benefits of low-demand parenting strategies. This approach has been adopted by many professionals, such as Dr. Naomi Fisher, who support families. It is becoming increasingly popular amongst parents, especially in neurodivergent communities or in communities where children are struggling with mental health. Many of the low-demand…
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Autism & OCD – What Could Help
Updated October 2026. Autism and OCD overlap in ways that are easy to mistake for one another, and getting that wrong leads to the wrong support. This post sets out the differences and what could help; for the attention side of the story, Monotropism, autism and OCD explains why thoughts can loop, and the monotropism…
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Autism is fluid
Updated October 2026. “Being Autistic” is one of the searches that brings most people here, so a word on where this post sits now. It is a short statement of the neurodiversity paradigm: autism is a way of being, not a disorder to fix, and Autistic needs are fluid. If you want the vocabulary behind…
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Neurodivergent Friendly Classrooms
Updated October 2026. I wrote this for Twinkl in 2023, and the attendance crisis it describes has only deepened. The classroom ideas still apply. Since then I have written about why behaviour-based approaches such as PBS do harm, and about the monotropism that underlies so much of what teachers see; both are worth reading alongside…
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Supporting neurodivergent students who are struggling to attend school
Updated October 2026. School attendance remains the question I am asked about most by families and schools, and the reasons have not changed: unmet needs, sensory overload, masking and burnout. This post sets out what schools can do. For the burnout side read the Autistic burnout hub and the teacher guide; for parents, Parent ideas…
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Supporting pupils through Autistic Burnout (Neuro-Affirming Teacher Guide)
Supporting pupils through Autistic Burnout (Neuro-Affirming Teacher Guide)
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Supporting autistic students experiencing OCD in a school setting
Updated October 2026. More pupils are living with OCD alongside being Autistic than most schools realise, and the support that works is rarely the standard behaviour plan. This guide is still my starting point for teachers; read it with Autism and OCD: what could help and, where burnout is part of the picture, the Autistic…
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Autism, OCD, Alexithymia & Interoception
Updated October 2026. Alexithymia and interoception are two of the least understood pieces of the autism and OCD picture, and I still get messages about this post every week. Since writing it I have explored the same territory through monotropism, which helps explain why anxious thoughts loop, and gathered the support side in Autism and…
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Education Crisis – Neurodiversity Affirming Teacher Training Needed
Language Identity First Language: In line with preferences from the Autistic community I will be using Identity First Language (ie. Autistic person, NOT person with Autism) Neurodiversity – This relates to the biological fact that human brains and minds differ from each other. Neurodiversity aligns with the idea that all children are unique and…
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Supporting Children through Autistic Burnout (Parent/Carer Guide)
Updated October 2026. This guide was one of the first things I wrote for Autistic Realms, and it is still the page most parents arrive at. Since then I have gathered everything on burnout into one place, the Autistic burnout hub, and written about how burnout differs from depression and about spoon theory and energy.…
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Parent ideas for autistic children struggling with school attendance
Updated October 2026. If your child cannot face school, there is always a reason, and the ideas here are about finding it rather than forcing attendance. Since I wrote this I have added a parent guide to Autistic burnout, which is behind a great deal of school distress, and a short explainer on spoon theory…
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‘Profound autism’ does not exist – rather there are autistic individuals with PMLD / PIMD
‘Profound Autism?’ Language matters, but it is complicated and there are constant changes of vocabulary and what is deemed as “correct” or inline with best practise of the time, particularly in education and health care. Earlier this year Emily Ansell Elfer (Feb 2022) shared the news that the phrase ‘Profound Autism’ had been ‘officially recognised…
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‘Profound’ in relation to those with PMLD / PIMD
PIMD / PMLD The International Association for the Scientific Study of Intellectual and Developmental Disabilities (Profound Intellectual and Multiple Disabilities – IASSIDD) supports individuals and their families who have profound intellectual and multiple disabilities (PIMD). They define this group of people by saying that ‘they are characterized by very severe cognitive, neuromotor and/or sensory…
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Ideas for Autistic Children who are Struggling at School
Updated October 2026. This was among the first posts on Autistic Realms and it is still the one I send to parents who sense something is wrong before anyone else does. The signs below hold. For what to do next, Parent ideas for Autistic children struggling with school attendance follows on, and the Autistic burnout…
