National Diversity Awards 2025 www.nationaldiversityawards.co.uk Congratulations Helen Edgar You have been nominated for the 2025 Positive Role Model Award for Disability: Sponsor - B Headline Sponsor HSBCUK

Testimonials for Autistic Realms

Testimonials gathered from National Neurodiversity Awards nomination feedback 2024 and 2025.

Feel free to vote for me and others here:

National Diversity Awards 2025 www.nationaldiversityawards.co.uk Congratulations Helen Edgar You have been nominated for the 2025 Positive Role Model Award for Disability: Sponsor - B Headline Sponsor HSBCUK

Helen is breaking new ground in the dismantling of neuronormativity while working tirelessly to grow and deliver her practice as an Autistic Advocate.

I have known of Helen’s work for over 20 years and she has had real impact in helping children and families.

Helen has used her personal experience of raising her family and late diagnosis to create a neuro affirming language and approaches to worrying with young people and their families .

Helen demonstrates an overwhelming commitment to the development of her work despite the challenges of daily living and raising a neurodivergent family. She is an outstanding practitioner in the teaching profession who has impacted immeasurably the lives of so many children and families during her SEND career. Helen is evidently a gifted researcher and writer who has influenced many thousands of people through her work and relentless efforts in raising awareness of what is an under- researched area and has made information accessible and meaningful for so many.

Image of sunset . Text reads: "Inclusion is not a matter of where you
are deodraonicallv. our or where you

feel you belong*

Mary Warnock 2005

Helen works tirelessly to provide a wide range of free resources to support parents, educators, and neurodivergent individuals. She is also actively involved in several groups that advocate for neuro-affirming practices, supporting a diverse range of individuals. I haven’t met anyone as dedicated to improving the lives of disabled individuals as Helen is.

Helen’s work is so thoughtful and necessary I often signpost people in carers groups and autistic adult groups alike. Her passion and compassion shine through in equal measure.

Helen’s blogs have provided invaluable support, reassurance and guidance on dealing with burnout and navigating the barriers of the educational system for children.

Helen is brilliant; she has helped so many parents/carers of autistic children and given them hope and advice on how to help their children better and to support them better.

Helen dedicates so much energy to her work. Her knowledge is outstanding and she shares this, to help others understand and learn. She is a brilliant role model.

Image of flower growing between cracks in pavement Text: Wild flowers offer hope. Be fiercely resilient. Find possibilities in-between hard spaces. Be authentic and flourish in adversity Transform the landscape. Be a wild flower. Helen Edgar, Autistic Realms

I know Helen’s work, as an advocate and writer. She is doing important work expanding resources for autistics and other disabled communities. She creates community and knowledge, helping destigmatize autistic ways of being and learning. And as someone who is autistic herself who is caring for two Neurodivergent children while also sharing her writing on monotropism and educational access, she is a role model for how to self-advocate and thrive in a world not designed for us. I can’t think of anyone more deserving of this award. As someone who is also late diagnosed auristic, I have gained a lot from knowing Helen through her work and writing. We connected via CASY and have collaborated on writing projects. All best, Julia Lee Barclay-Morton, PhD

I have followed Helen on social media for a long time now her neuro affirming approach is refreshing and so needed. She makes people feel seen and heard and always encourages people to be their autistic, authentic selves.

Her posts and information sharing is so relevant and helpful to me as SEN practitioner, working with children and families through portage. She truly deserves this, such a passionate and inspiring lady.

Helen is completely accepting of everyone and welcoming. She finds ways to help people feel involved

Helen is an amazing colleague and collaborator with Cultural Autism Studies at Yale!

Really helping me to reflect on my practice and work in ways which truly celebrate abundance support unique ways of being. As a parent and teacher working to support autistic culture and wellbeing your work is fantastic. It feels right and brings joy. Thank you.

Helen’s knowledge is just immense. Her values and principles shine through and her commitment to sharing understanding is huge. Her map in conjunction with Stimpunks was just so so brilliant. But she’s humble too. And I love that.

Helen is a great advocate and source of neuroaffirmative information for neurodivergent people, their families and the professionals who work with them.

image of birds flying from cage. quote “Do the best you can until you know better. Then, when you know better, do better.” Maya Angelou

Helen Edgar’s writings have taught me so much, and they are so accessible that I often share them with people just starting to learn about neurodivergence and disability too.

Helen’s work around neurodivergence is nothing short of incredible. She has worked her neurodivergent little (seam free sensory) socks off to build trusted relationships with young people navigating their lives through a neurotypical jungle. What she does is build up confidence, self esteem and resilience within neurodivergent people and help them find their own way in life. She is a fantastic role model and me to for so many people.

Helen has helped my mum to understand my sister and I better, as we are both autistic. My mum has learnt more strategies on how to support us, when we are in burnout, due to Helen’s work. We are grateful for all the work that she does and shares with the autistic community, so that parents have accounts of lived experiences of actually autistic individuals.

Helen’s work is making a real, lasting impact on the neurodivergent community. As an Autistic advocate, educator, and parent to neurodivergent children, Helen brings both personal experience and professional expertise to everything she does. Through Autistic Realms and her extensive collaborations with organisations like Thriving Autistic, GROVE, and Spectrum Gaming, Helen is actively changing the conversation around neurodiversity in education and healthcare. She promotes neuro-affirming practices, raises awareness of the challenges neurodivergent individuals face—especially in accessing education—and provides invaluable resources to families, professionals, and communities. Her advocacy around monotropism, burnout, and barriers to education has been widely recognised and shared across NHS trusts, local authorities, schools, and international networks. Helen is not just raising awareness—she is driving real change, ensuring that neurodivergent voices are heard and that support systems evolve to meet their needs. Her dedication, expertise, and relentless passion for inclusion and understanding make her a truly deserving nominee.

Helen has worked tirelessly to develop resources that support parents/carers and professionals to better understand the autistic experience. Her work on Monotropism and burnout have been especially impactful for understanding autistic children and young people who may be experiencing barriers to school attendance. I have no doubt that for some families the work that Helen has done it lifechanging. Helen has also produced most of this for free.

I have learnt so much from Helen that will help me to support my children. Her work is accessible but of a high standard that I can share with my children’s school and grandparents alike. It’s even helped me to understand my own autism and advocate for my own support needs. Helen does all this from a place of kind curiosity completely none judgemental.

Image of tree roots and leaves. Text: Power of Empathy "Power of empathy: I'm in it with you. I'm not here to fix you. I'm not here to feel it for you. I'm here to feel with you and let you know you re not alone. - Brene Brown

Helen has impacted my own family’s understanding of our children’s experience more than she will ever know. The empathy and compassion with which she approaches every aspect of her work shines through. I believe that she deserved to be thanked and celebrated for the immense support she has given so many families with her writing and advocacy work.

Helen (Autistic Realms) and the information she researches and shares with the wider community is pivotal for young and older people who are searching real understanding and personal advocacy about neurodiversity.

As a director and steering group members of a parent carer forum I am forever sharing the amazing resources Helen from Autistic Realms creates . Lots of our 950 members love the resources we share from Autistic realms including linking them to your autistic burn out guide ! Incredible work and well deserved nomination Good luck !

Image of sea. Text reads:"Once the storm is over you won't remember how you made it through.... But one thing is certain. When you come out of the storm you won't be the same person who walked in." Kafka on the Shore, Haruki Murakami

Helen’s well formated, easy to read online resources are a vital source of much needed information for parent communities. Those of us whose autistic children have had their needs ignored and have lacked support from schools or CAMHS can feel scared and isolated. Reading Helen’s information on monotropism or autistic burnout transforms our understanding and signposts further support. As a member of several online groups, including the Autistic Girls Network, I very frequently read posts from parents who are seriously worried about their autistic children’s mental health and behaviour. It is quick and easy to share a link to Helen’s site. I know that for many of us, reading Helen’s information has been the key to turning very worrying situations around.

Helen is an amazing advocate, educator and peer support. She helped me personally, through a really tough time. She has a neuroaffirming approach and her skills and knowledge are priceless!!!!

Helen is a passionate and engaged activist and advocate for the Autistic community. Her work around educational spaces and neurodiversity has the potential to change many things for the better, and for that reason, I really believe that by winning this award she would be in a stronger position to advance the cause and benefit Autistic and otherwise neurodivergent children up and down the UK.

What can I say about Helen? Not enough! In the short time she has been active, her pages, her insight and passion are actively changing the understanding of what it means to be Autistic across so manty areas. Her images, resources and collaborations are reframing and informing so any in being Neuroaffirming and inclusive. She is just simply lush!

Helen creates fantastic resources for the community that are easy to understand , easy to share and much of her work is shared for free. Helen is an awesome Positive Role Model.

Outstanding representation of autism throughout her work. Her passion to raising autistic voice is tireless. Her visuals and memes give powerful insight to those new to key autistic concepts while validating the lived experience of so many of us within the autistic community.

Image of frozen droplet of water in snow Text: "HAD I NOT CREATED MY WHOLE WORLD. I WOULD CERTAINLY HAVE DIED IN OTHER PEOPLE'S" ANAIS NIN

Helen’s tireless advocacy for autistic and neurodivergent people is helping to flip the narrative about their strengths, preferences, and needs. She continues to create and share a range of research summaries, accessible resources, and signposts to other neurodivergent-affirming practitioners.

Helen is powerfully poignant in everything she does. Her humanity shines so brightly and her integrity is front and centre. Helen brings light to a much needed space, often at the edges of society still, where we see so many people ignored, and pushed aside. She has worked tirelessly to change the lens and view and more than deserves this award, there should be one for the most brave positive role model, which is who she is daily.

Helen has worked for over 20 years as a teacher for children with special needs. She has tirelessly supported children and their families to ensure that they are supported appropriately in school and at home. She has been a leading professional in the development of curriculum and training for a range of staff across education, health and social care.

Helen creates invaluable resources that benefit the community. She is a seemingly bottomless pool of knowledge and has helped countless people

Helen is a great educator and is a vital resource for autistic families.

She has been an inspiration to me. I’m a late diagnosed autistic woman and she has been truly inspiring

Helen is totally committed to supporting families and communicating effective strategies for helping children and their families to cope and grow.

Helen is a fabulous role model and advocate for neurodiversity. The material Helen shares is always really clear, interesting to read and very useful.

Helen is a passionate and engaged activist and advocate for the Autistic community. Her work around educational spaces and neurodiversity has the potential to change many things for the better, and for that reason, I really believe that by winning this award she would be in a stronger position to advance the cause and benefit Autistic and otherwise neurodivergent children up and down the UK.

Outstanding representation of autism throughout her work. Her passion to raising autistic voice is tireless. Her visuals and memes give powerful insight to those new to key autistic concepts while validating the lived experience of so many of us within the autistic community.

Green background Text of quote: One of the most vital ways we sustain ourselves is by building communities of resistance, places where we know we are not alone. bell hooks bell hooks (2014). "Yearning: Race, Gender, and Cultural Politics", p.227, Routledge

Helen’s tireless advocacy for autistic and neurodivergent people is helping to flip the narrative about their strengths, preferences, and needs. She continues to create and share a range of research summaries, accessible resources, and signposts to other neurodivergent-affirming practitioners.

Helen is totally committed to supporting families and communicating effective strategies for helping children and their families to cope and grow.

Helen is a fabulous role model and advocate for neurodiversity. The material Helen shares is always really clear, interesting to read and very useful.

Helen works so hard to promote understanding of neurodiversty and in providing vital support to those who need it

Well-needed support for autistic families.

Helen is amazing! Her knowledge and understanding is inspirational. The support she has gave me and the things I have learnt from her I will forever be grateful for.

Image wave tunnel in the sea with light shining through Text: "It's a monotropism thing":


Latest Posts

  • Autistic Burnout – Supporting Young People At Home & School

    Autistic Burnout – Supporting Young People At Home & School

    Autistic burnout in young people is real—and recovery starts with understanding. This post offers neuroaffirming ways to spot the signs, reduce demands, and truly support. 💛 #AutisticBurnout #Neuroaffirming #Monotropism #AutisticSupport


  • Monotropic Interests and Looping Thoughts

    Monotropic Interests and Looping Thoughts

    The theory of monotropism was developed by Murray, Lawson and Lesser in their article, Attention, monotropism and the diagnostic criteria for autism (2005). ​ Monotropism is increasingly considered to be the underlying principle behind autism and is becoming more widely recognised, especially within autistic and neurodivergent communities. Fergus Murray, in their article Me and Monotropism:…


  • Map of Monotropic Experiences

    Map of Monotropic Experiences

    Monotropism seeks to explain Autism in terms of attention distribution and interests.  OSF Preprints | Development and Validation of a Novel Self-Report Measure of Monotropism in Autistic and Non-Autistic People: The Monotropism Questionnaire This map highlights 20 common aspects of my personal monotropic experiences. How many do you experience? Where are you on the map…


  • Autistic Burnout – Supporting Young People At Home & School

    Autistic Burnout – Supporting Young People At Home & School

    Being autistic is not an illness or a disorder in itself, but being autistic can have an impact on a person’s mental and physical health. This is due to the often unmet needs of living in a world that is generally designed for the well-being of people who are not autistic. In addition, three-quarters of…


  • The Double Empathy Problem is DEEP

    The Double Empathy Problem is DEEP

    “The growing cracks in the thin veneer of our “civilised” economic and social operating model are impossible to ignore”, Jorn Bettin (2021). The double empathy problem (Milton, 2012) creates a gap of disconnect experienced between people due to misunderstood shared lived experiences. It is “a breakdown in reciprocity and mutual understanding that can happen between people…


  • Top 5 Neurodivergent-Informed Strategies

    Top 5 Neurodivergent-Informed Strategies

    Top 5 Neurodivergent-Informed Strategies By Helen Edgar, Autistic Realms, June 2024. 1. Be Kind Take time to listen and be with people in meaningful ways to help bridge the Double Empathy Problem (Milton, 2012). Be embodied and listen not only to people’s words but also to their bodies and sensory systems. Be responsive to people’s…


  • Autistic Community: Connections and Becoming

    Autistic Community: Connections and Becoming

    Everyone seeks connection in some way or another. Connections may look different for autistic people. In line with the motto from Anna Freud’s National Autism Trainer Programme (Acceptance, Belonging and Connection), creating a sense of acceptance and belonging is likely to be more meaningful for autistic people than putting pressure on them to try and…


  • Monotropism, Autism & OCD

    Monotropism, Autism & OCD

    This blog has been inspired by Dr Jeremy Shuman’s (PsyD) presentation, ‘Neurodiversity-Affirming OCD Care‘ (August 2023), available here. Exploring similarities and differences between Autistic and OCD monotropic flow states. Can attention tunnels freeze, and thoughts get stuck? Autism research is shifting; many people are moving away from the medical deficit model and seeing the value…


  • Monotropism Questionnaire & Inner Autistic/ADHD Experiences

    Monotropism Questionnaire & Inner Autistic/ADHD Experiences

     Over the past few weeks, there has been a sudden surge of interest in the Monotropism Questionnaire (MQ), pre-print released in June 2023 in the research paper ‘Development and Validation of a Novel Self-Report Measure of Monotropism in Autistic and Non-Autistic People: The Monotropism Questionnaire.‘ by Garau, V., Murray, A. L., Woods, R., Chown, N.,…


  • Penguin Pebbling – An Autistic Love Language

    Penguin Pebbling – An Autistic Love Language

        What is Penguin Pebbling? I think it was Amythest Schaber that first came up with the concept as part of the 5 neurodivergent love languages. Penguins pass pebbles to other penguins to show they care. Penguin Pebbling is a little exchange between two people to show that they care and want to build…


  • Being With People with Profound and Multiple Learning Disabilities Through Attunement and Shared Time

    Being With People with Profound and Multiple Learning Disabilities Through Attunement and Shared Time

    There’s something incredibly powerful in the simple idea of being with someone. Not doing to or even doing with or for, but truly being with. For people with PMLD, attunement, emotional connection, and flexible shared time can help to create more space for trust and support wellbeing.


  • The Power of Monotropic Flow: Reclaiming Ourselves Through Creative Practice

    The Power of Monotropic Flow: Reclaiming Ourselves Through Creative Practice

    “Art opens up space for healing and a way of reclaiming your own narrative”. Letting go of how we should rest or should work opens up a pathway towards restorative flow.


  • Empowering Advocacy: Neuro-Affirming Support for Your Autistic Young Person at School

    Empowering Advocacy: Neuro-Affirming Support for Your Autistic Young Person at School

    By Helen Edgar (Autistic Realms), with David Gray-Hammond & Tanya Adkin Navigating the education system as the parent or carer of an Autistic child can often feel like steering a tiny boat through stormy seas, it can feel impossibly hard and be exhausting. For many families, the challenge isn’t just the school system; it’s the…


WordPress Cookie Plugin by Real Cookie Banner