Burnout Resources & Signposting


Autistic Burnout resources for young people, families & educational settings to help develop understanding and support healing.


Articles and Resources about Autistic Burnout

Thinking Person’s Guide to Autism Autistic Burnout Article, written by Helen Edgar of Autistic Realms.

Autism Understood website by Spectrum Gaming has been written by and for young autistic people & is amazing! Helen Edgar of Autistic Realms contributed to the Autistic Burnout section.

 

Research


Arnold, S. R., Higgins, J. M., Weise, J., Desai, A., Pellicano, E., & Trollor, J. N. (2023). Confirming the nature of autistic burnout. Autism, 27(7), 1906–1918. https://doi.org/10.1177/13623613221147410

Arnold, S, Higgins, J., Weise, J., Desai, A., Pellicano, E. & Trollor, J. (2021). Investigating autistic burnout #AutBurnout: Final Report. Brisbane: Autism CRC.
https://www.autismcrc.com.au/sites/default/files/reports/3-076RI_Autistic-Burnout_Executive-summary.pdf

Browne, K., Lawson, W., McGarry, S., Scott, M., Girdler, S., & Milbourn, B. (2024). “Consistent Support is Good for my Mental Health”—Exploring the lived experience of autistic mental health. Autism in Adulthood. https://doi.org/10.1089/aut.2024.0141

Buckle, Karen Lenah., (2022) Autistic inertia: What it is and what helps https://autisticinertia.com/wp-content/uploads/2022/06/Inertia-what-it-is-and-what-helps.pdf

Carney, D. (2024, February 28), Study explores what it’s like to experience autistic burnout. . BPS. https://www.bps.org.uk/research-digest/study-explores-what-its-experience-autistic-burnout

Ferguson, AshtonMartin, David and Pearson, Amy (2024) “It has shown me how much I am capable of”: An Exploration of Autistic Burnout Experiences in Motherhood. Autism in Adulthood. ISSN 2573-9581 https://sure.sunderland.ac.uk/id/eprint/18500/

Higgins, Julianne; Arnold, Samuel (2023). Understanding autistic burnout from experts with lived experience. Nature Awards for Inclusive Health Research. Online resource. https://doi.org/10.6084/m9.figshare.24659622.v2

Higgins, J., 1, Weise, J., Trollor, J., 1, Pellicano, E., & Samuel Arnold. (2021). Defining Autistic Burnout using Grounded Delphi Method: Autistic Burnout through the Eyes of Experts by Lived Experience. In Department of Developmental Disability Neuropsychiatry (3DN), UNSW Sydney, NSW, Australia. https://www.autismcrc.com.au/sites/default/files/posters/3-076RI_Higgins_Defining_Autistic_Burnout_using_Grounded_Delphi_Method.pdf

Mantzalas, J., Richdale, A. L., Li, X., & Dissanayake, C. (2024). Measuring and validating autistic burnout. Autism Research, 17(7), 1417–1449. https://doi.org/10.1002/aur.3129


Raymaker, D. M., Teo, A. R., Steckler, N. A., Lentz, B., Scharer, M., Santos, A. D., Kapp, S. K., Hunter, M., Joyce, A., & Nicolaidis, C. (2020). “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout. Autism in Adulthood, 2(2), 132–143. https://doi.org/10.1089/aut.2019.0079

Rosqvist, H. B., Hultman, L., & Hallqvist, J. (2023). Energy management. Alter, 17–3, 25–38. https://doi.org/10.4000/9ifu

Royal College of Psychiatry: The psychiatric management of autism in adults CR228, July 2020
This document is part of the College’s commitment to improving mental health services for those autistic adults who do not have a generalised intellectual disability.

https://www.rcpsych.ac.uk/improving-care/campaigning-for-better-mental-health-policy/college-reports/2020-college-reports/cr228

Schoondermark, F., Spek, A., & Kiep, M. (2024). Evaluating an autistic burnout measurement in women. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-024-06438-8

Sici Zhuang, Diana Weiting Tan, Susan Reddrop, Lydia Dean, Murray Maybery, Iliana Magiati, (2023) Psychosocial factors associated with camouflaging in autistic people and its relationship with mental health and well-being: A mixed methods systematic review, Clinical Psychology Review, Volume 105, 2023, 102335, ISSN 0272-7358, https://doi.org/10.1016/j.cpr.2023.102335.


Crisis Support
 

Papyrus – prevention of young suicide

https://www.papyrus-uk.org

Supporting Autistic Adult’s Mental Health:

https://amase.org.uk/resources/mhguide/


Autistic burnout. Up arrow - increase sensory regulation. Down arrow - decrease demands


Why CBT may not be the best approach for all Autistic people

FREE PDF DOWNLOAD


Anti-ABA and
Anti PBS
FREE PDF DOWNLOAD

Image: child lying on bed. Text: AutisticBurnout: A Family Guide Developing understanding & opening up conversations to support children and young people through Autistic Burnout. Helen Edgar www.autisticrealms.com
Autistic Burnout Family Guide Feedback and Reviews. " I love it, It could be such a valuable resource. I think it's absolutely brilliant - I really enjoyed it and feel that it could be something that many families will find super useful - well done!" Dr. Luke Beardon Senior Lecturer in Autism 2023
Autistic Burnout Family Guide Feedback and Reviews. This is a brilliant resource for parents and carers with Autistic children/young people. It offers a thorough and well researched account of Autistic burnout from the valuable perspective of lived experience. This is balanced with practical suggestions for support that would undoubtedly make a difference to the child/young person as well as their wider family. Highly recommended! (May 2023). Jess, Founder ofGROVE Neurodivergent Mentoring & Education




If you know of further signposting for children and young people/families/education please let me know.

Embracing Monotropism and Supporting Young People To Help Prevent Autistic Burnout

5 stars Text: Book Review This is a lovely little book that will be valuable for parents, teachers, clinicians, and Autistic people themselves to help them understand their monotropic nervous system and how to work with it rather than against it. Embracing Monotropism and Supporting Young People To Help Prevent Autistic Burnout by Helen Edgar 2023

5 stars Text: Book Review Gosh, I wish this had been available when my own child was identified as autistic as I think it could have helped me prevent a 13 month long period of burnout. This is an absolutely brilliant read for parents/carers but also any professional working with autistic children and young people. I honestly couldn't recommend this more highly! Embracing Monotropism and Supporting Young People To Help Prevent Autistic Burnout by Helen Edgar 2023