A person wearing a grey hoodie sits alone on a wooden bench, leaning forward with their head down, looking toward a sunset over a grassy field and water. The scene conveys solitude, reflection, or grief. Image from Canva

Being Autistic shapes grief: Explore unique paths through loss and affirming support


Explore how Autistic people may experience grief differently and discover affirming resources, support, and strategies for navigating loss.



While every individual experiences loss differently and it is always painful, many Autistic people describe grief as arriving on a different timescale, taking alternative forms, and often being misinterpreted and misunderstood by those around them. Things like alexithymia and our interoceptive differences will all likely impact how some people process grief differently.


How Autistic People May Experience Grief Differently

John Pendal, in his reflections on Autism and Grief (2025), explains that Autistic people may not process a loss immediately. It may take weeks, months, or even years before some emotions surface. This can mean that some people may appear calm, composed, or even “stoic”, sometimes being praised for supporting others while our own grief is still waiting to be felt. When our grief finally emerges, others may have already moved on a bit and have learnt ways of adjusting, leaving us without support at the time we most need it.

Social Expectations and Autistic Authenticity

For some Autistic people, grief shows up less as outward sadness and more as exhaustion, burnout, or physical symptoms or sensory dysregulation. As Pendal notes, we may even be questionned for not showing the “right” kind of distress that is expected. This reflects a broader challenge that grief for Autistic people may not always align with expected neuronormative social scripts and ways of processing. The Thinking Person’s Guide to Autism article Autistic grief is not like neurotypical grief, by Fisher (2012) highlights that grief may manifest as sensory overload, shutdowns, meltdowns, or a strong need for solitude. These differences are often pathologized, but they are simply part of the diversity of human grief responses.

The ND Connection Autistic & navigating grief article by Kyra Thompson (2024), also emphasises how grief can seemingly intensify some Autistic traits, affecting executive function, increasing anxiety, or leading to greater dependence on routines for safety. It may be that this is a way some of us channel our monotropic processing in a survival mode, leaving little space for anything else, much like in burnout. Change and unexpected events are already often a challenge for many Autistic people, when combined with bereavement rituals and expectations, visitors, well meaning texts, phone calls, and disrupted schedules, the energy costs can be overwhelming and hard to navigate.

Support and Resources for Autistic Grief

Resources are emerging to better support these experiences and support Autistic people. The Autism and Grief Project offers an online toolkit with personal stories, resources and guidance for Autistic adults and those who care for them. Importantly, it validates Autistic ways of grieving, affirming that “your way is just as valid”, there is no right way to grieve.

Practical supports can help and the Thinking Person’s Guide to Autism article Autistic Grief Is Not Like Neurotypical Grief by Karla Fisher (2012), suggests strategies such as allowing time alone, tending to physical needs (rest, nutrition, movement), engaging with special interests, more time stimming and setting realistic expectations for how long grief may last which maybe a very long time.

Pendal shares a client’s simple response to the often asked, “How are you feeling?” questions with a suggested reply of “I’m still processing.” This answer both communicates truth and sets a boundary, offering a model for Autistic self-advocacy.

Ultimately, grief is not a one-size-fits-all experience and it doesn’t have a timeline. For Autistic people, it may be quieter, slower and more embodied, or it may go in the completely opposite direction. What matters most is recognising these differences, resisting judgment, and ensuring support remains available, however long it takes and whenever it may be needed through the spirally journey ahead.


Research & Resources

Pendal, J. (2025). Autism and grief. John Pendal Coaching. Retrieved from https://www.johnpendal.com/blog.html

Fisher, K. (2012). Autistic grief is not like neurotypical grief. Thinking Person’s Guide to Autism. Retrieved September 9, 2025, from https://thinkingautismguide.com/2012/08/autistic-grief-is-not-like-neurotypical.html

**(I am aware our use of language and framing of Autism has moved on considerably since this was written in 2012, but I think it is a valuable article and hope you do too)

Leicestershire NHS Partnership, Bereavement for Autistic people
https://www.leicspart.nhs.uk/autism-space/emotional-wellbeing/bereavement-for-autistic-people/

Mair, A.P.A., Nimbley, E., McConachie, D. et al. (2024). Understanding the Neurodiversity of Grief: A Systematic Literature Review of Experiences of Grief and Loss in the Context of Neurodevelopmental Disorders. Rev J Autism Dev Disord. https://doi.org/10.1007/s40489-024-00447-0

Silvertant E., (2025). Autistic experiences of grief & loss Embrace Autism. https://embrace-autism.com/autistic-experiences-of-grief-and-loss/

Srinivasan, H. (2024, February 12). Beyond the five stages of grief: Understanding autism and loss. Psychology Today. https://www.psychologytoday.com/gb/blog/giving-voice/202402/the-spectrum-of-loss-grief-through-the-autistic-lens


Thompson, K. (2024, April 22). Autistic & navigating grief. ND Connection. Retrieved September 9, 2025, from https://ndconnection.co.uk/blog/autistic-navigating-grief



Wonderful resources and further signposting available here:

Autism and Grief Project



If you need professional support please check out:

Thriving Autistic’s Directory of Neuro-Affirming Neurodivergent Practitioners






Latest Posts

  • Autistic Burnout – Supporting Young People At Home & School

    Autistic Burnout – Supporting Young People At Home & School

    Autistic burnout in young people is real—and recovery starts with understanding. This post offers neuroaffirming ways to spot the signs, reduce demands, and truly support. 💛 #AutisticBurnout #Neuroaffirming #Monotropism #AutisticSupport


  • Monotropic Interests and Looping Thoughts

    Monotropic Interests and Looping Thoughts

    The theory of monotropism was developed by Murray, Lawson and Lesser in their article, Attention, monotropism and the diagnostic criteria for autism (2005). ​ Monotropism is increasingly considered to be the underlying principle behind autism and is becoming more widely recognised, especially within autistic and neurodivergent communities. Fergus Murray, in their article Me and Monotropism:…


  • Map of Monotropic Experiences

    Map of Monotropic Experiences

    Monotropism seeks to explain Autism in terms of attention distribution and interests.  OSF Preprints | Development and Validation of a Novel Self-Report Measure of Monotropism in Autistic and Non-Autistic People: The Monotropism Questionnaire This map highlights 20 common aspects of my personal monotropic experiences. How many do you experience? Where are you on the map…


  • Autistic Burnout – Supporting Young People At Home & School

    Autistic Burnout – Supporting Young People At Home & School

    Being autistic is not an illness or a disorder in itself, but being autistic can have an impact on a person’s mental and physical health. This is due to the often unmet needs of living in a world that is generally designed for the well-being of people who are not autistic. In addition, three-quarters of…


  • The Double Empathy Problem is DEEP

    The Double Empathy Problem is DEEP

    “The growing cracks in the thin veneer of our “civilised” economic and social operating model are impossible to ignore”, Jorn Bettin (2021). The double empathy problem (Milton, 2012) creates a gap of disconnect experienced between people due to misunderstood shared lived experiences. It is “a breakdown in reciprocity and mutual understanding that can happen between people…


  • Top 5 Neurodivergent-Informed Strategies

    Top 5 Neurodivergent-Informed Strategies

    Top 5 Neurodivergent-Informed Strategies By Helen Edgar, Autistic Realms, June 2024. 1. Be Kind Take time to listen and be with people in meaningful ways to help bridge the Double Empathy Problem (Milton, 2012). Be embodied and listen not only to people’s words but also to their bodies and sensory systems. Be responsive to people’s…


  • Autistic Community: Connections and Becoming

    Autistic Community: Connections and Becoming

    Everyone seeks connection in some way or another. Connections may look different for autistic people. In line with the motto from Anna Freud’s National Autism Trainer Programme (Acceptance, Belonging and Connection), creating a sense of acceptance and belonging is likely to be more meaningful for autistic people than putting pressure on them to try and…


  • Monotropism, Autism & OCD

    Monotropism, Autism & OCD

    This blog has been inspired by Dr Jeremy Shuman’s (PsyD) presentation, ‘Neurodiversity-Affirming OCD Care‘ (August 2023), available here. Exploring similarities and differences between Autistic and OCD monotropic flow states. Can attention tunnels freeze, and thoughts get stuck? Autism research is shifting; many people are moving away from the medical deficit model and seeing the value…


  • Monotropism Questionnaire & Inner Autistic/ADHD Experiences

    Monotropism Questionnaire & Inner Autistic/ADHD Experiences

     Post first published 28th July 2023 Over the past few weeks, there has been a sudden surge of interest in the Monotropism Questionnaire (MQ), pre-print released in June 2023 in the research paper ‘Development and Validation of a Novel Self-Report Measure of Monotropism in Autistic and Non-Autistic People: The Monotropism Questionnaire.‘ by Garau, V., Murray,…


  • Penguin Pebbling: An Autistic Love Language

    Penguin Pebbling: An Autistic Love Language

    Penguin Pebbling is a neurodivergent way of showing you care, like sharing a meme or twig or pretty stone to say “I’m thinking of you,” inspired by penguins who gift pebbles to those they care about.


  • Discovering Belonging: Creating Neuro-Affirming Animations with Thriving Autistic

    Discovering Belonging: Creating Neuro-Affirming Animations with Thriving Autistic

    Discovering Belonging: Neuro-Affirming Animations with Thriving Autistic. Celebrate Autistic identity through the Discovery Programme and new animations that explore belonging, strengths, and community.


  • Being Autistic shapes grief: Explore unique paths through loss and affirming support

    Being Autistic shapes grief: Explore unique paths through loss and affirming support

    Explore how Autistic people experience grief differently and discover affirming resources, support, and strategies for navigating loss with compassion.


  • Reflections on the Autistic Mental Health Conference 2025

    Reflections on the Autistic Mental Health Conference 2025

    Reflections On The Autistic Mental Health Conference. An Interview between David Gray-Hammond & Helen Edgar


WordPress Cookie Plugin by Real Cookie Banner