Navigating PANS/PANDAS & Neurodivergence

Navigating PANS and PANDAS

Laura Hellfeld (RN, MSN, PHN, CNL) wrote this article and created the resources. I edited the article for Autistic Realms in October 2025 and supported the development of Laura’s resources.

Connect with Laura on social media:

LinkedIn, Instagram, Facebook and BlueSky

Disclaimer: The information shared in this blog is for informational purposes only and is not intended to replace medical advice, diagnosis, or treatment. Please consult a licensed healthcare provider for personalised support and care tailored to your specific needs.

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Signposting and Resources

• PANS/PANDAS UK
  
• PANS/PANDAS frequently asked questions
  
• PANS Life Facebook page
  
• PANS Australia and PANS Australia Facebook page
  
• PANS PANDAS Foundation Ireland
  
• PANS PANDAS Education with Shara Virlan

The following list was collated and shared by Romy Worthington

• Romy’s PANDAS/PANS and OCD Youtube Playlist: https://www.youtube.com/playlist?list=PL39925jJXko0mAIEKiO9k9TwOdKl9tJ4M
  
• Romy’s Instagram page with a lot of PANDAS/PANS posts: https://www.instagram.com/chronic.advocate?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==
  
• Information on antibiotics for PANDAS/PANS: https://www.pandasppn.org/antibiotics/
  
• Royal College of Nursing PANDAS/PANS information: https://www.rcn.org.uk/news-and-events/Blogs/pans-pandas-a-mysterious-and-debilitating-paediatric-disorder-180523
  
• When specific foods trigger brain inflammation in children: https://www.lymedisease.org/members/lyme-times/2023-summer-news/foods-trigger-brain-inflammation/
  
• Patient stories of brain inflammation: https://braininflammation.org/patient-stories/
  
• A parent talking about the importance of antiviral treatment when antibiotics don’t work: https://www.linkedin.com/posts/emiliametzel_weeklypans-activity-7192897265559097344-fDqn?utm_source=share&utm_medium=member_desktop
  
• Food Sensitivities: https://theconversation.com/people-can-have-food-sensitivities-without-noticeable-symptoms-long-term-consumption-of-food-allergens-may-lead-to-behavior-and-mood-changes-192570
  
• Finding a doctor:
  1. https://www.finder.bupa.co.uk/Consultant/view/153066/professor_gareth_morgan
  2. https://www.phin.org.uk/profiles/consultants/dr-maria-kinali-129394
     
• The Children’s E-hospital, Dr Ubhi: https://drtimubhi.com
  
• PANS PANDAS UK Facebook group: https://aspire.care/treating-pans/medications/
  
• Information on false FII allegations: https://panspandasuk.org/support-resources/safeguarding-and-fii/
  
• Stanford medicine PANS PANDAS Q&A: https://med.stanford.edu/pans/about/Q-and-A.html
  
• A Q&A with an expert on PANS and Lyme: https://neuroimmune.org/dr-shannon-delaney-interview/
  
• Info on Lyme testing: https://arminlabs.com/en/diseases/bacteria/lyme-borreliosis
  
• PANS PANDAS UK facebook group: https://www.facebook.com/groups/189721514954497

Find out more about Neurodivergence and PANS/PANDAS

Could it be PANS/PANDAS… Be Curious!

Neurodivergence

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